Where is the Hope?

For years, I felt invisible.


Diagnosed with Axial Spondylaritis (AS) at 16, I spent my teenage years battling an illness many believed didn’t even exist.

Growing up, I learnt to live with constant pain and fatigue, but the hardest part was convincing others that my condition was real.

Doctors were skeptical, friends didn’t understand, and I often felt completely alone.

But over time, I found strength in my eventual diagnosis.

I learnt to advocate for myself, accept my condition, and connect with others who truly understood what it meant to live with an invisible illness.

Now, I want to share my story and support others who feel just as lost as I once did and sometimes still do.

If you’re living with AS or any invisible illness, you’re not alone.

My goal is to create a space where we can talk about our experiences and raise awareness.

From now on, I’ll be creating content once or twice a week to help others manage the emotions that come with living with a chronic condition.

I’m calling this project “Where is the Hope?”

It was inspired by a quote I read a while back, which made me want to share my experiences in the hope that it might help others feel less alone.

If you’ve experienced something similar or know someone who has, I’d love to hear your story and connect with you.

With Love,
Bea xx